Genetics Repository

Looking for a disease specific organization? Hunting down a biobank network? In need of patient advocate information? With over 10,000 groups, approximately 1,000 of those representing disease specific organizations, Genetic Alliance is your go to source.

I’ve had many opportunities to partner with Genetic Alliance over the last 13+ years and have found an incredible network of partners and shared learning. The annual summer conference provides solid information on cutting edge research, technology and policy issues and gives all stakeholder groups a chance to network and connect, including individuals and families. Time is spent throughout the rest of the year providing small group learning circles where individuals and groups come together around issues of need/importance. Check out the Resource page and subscribe to stay informed.

Know your family health history? Check out this great resource to help you collect information, assess your risk, and address ethnic and cultural concerns. Family Health History

 

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