CCAKidsPosted: June 23, 2012
I don’t remember exactly how I became connected with CCA, but I am SO grateful I did! The Children’s Craniofacial Association empowers and gives hope to individuals and families affected by facial differences.
Each summer families gather for the CCA Family Retreat, sponsored in part by Cher. In 1985 Cher starred in the movie MASK about a boy living with craniodiaphyseal dysplasia, a rare disorder. She was moved by the families and individuals she met through this film process and wanted to give something back, so each summer, families are blessed by her generosity during the family retreat…3 days where the families can let down their hair, connect with friends new and old and enjoy life together. We have attended 2 CCA retreats; Nashville, TN and Salt Lake City, Utah.
CCA also provides resources and connections for individuals and families needing to make connections to specialists or other families. If families need assistance finding or funding a specialist, CCA may be able to assist. And there’s more…check out the website to see all the awesome stuff CCA is doing to support individuals and families affected by facial differences.