CCHD – New Born Screening

CCHD – Critical Congenital Heart Disease, as the mom of two kids with heart issues I know the need for good new born screening. (And the need for thorough pre-born screening as well)  One of my children had severe heart issues (VSD, ASD, small mis-shappen aorta, pulmonary atresia, situs inversus totalis-heart flipped/flipped and in wrong place, etc…, multiple surgeries) and one of my children has a “simple” VSD (closed on it’s own by age 5). It’s not just about having the screening resource, but understanding it’s usefulness and how it works. Here’s a video on CCHD for parents to help understand the need for and the process of this test:

 

Baby’s First Test provides great information for new parents on what new born screening tests are available and how to talk with your doctor about the tests and subsequent results. There’s also state by state info on screening and news and blog links to follow and dialog along with others.

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